Initial Work and Advocacy Plan
Neda
MILEVSKA-KOSTOVA
June 2005
Aims of the Project
The project Patient Rights as a Policy Issue is aimed at analysis of
the patients’ rights policies and the level and quality of their
implementation in different national contexts, as well as in the light
of different ethnical groups, especially focusing on the Roma
population, as the most disadvantaged and socially excluded, and the
one suffering largest inequalities and discrimination.
The research will target to achieve:
(1) Comparative analysis of the existing legislation
and policies, their compliance with the common
health and social policies of the
EU, as part of the harmonization of their legislation with the EU
legislation towards the ultimate
goal of EU membership.
(2) Evaluation of the level and quality of
implementation of the patients’ rights legislation, especially
focusing on the Roma population
as the most marginalized ethnical group in the countries in the
region.
(3) Policy recommendations for the patients’ rights
and human rights in health care settings in general
to be presented to the policy
makers and decision-makers in the country
OSI Network Program Collaboration (Potential)
OSI
Public Health
International Harm Reduction Development Program www.soros.org/initiatives/ihrd/about
Mental Health Initiative
www.soros.org/initiatives/mhi/about
Human Rights EUMAP www.soros.org/initiatives/eu
Roma Programs
Romani Health www.soros.org/initiatives/roma/focus_areas/romani_health
IPF Alumni
Mental Disability Advocacy
Daiga Kamerade, Latvia (fellow 2004-2005)
Media communication strategies to increase awareness of the rights of
people with mental disabilities
Equal Opportunity Policy
Philip Martinov Gounev, Bulgaria (fellow 2004-2005)
The economic costs of discrimination against the Roma minority in
Bulgaria.
Education Policy
Csilla Bartha, Hungary (fellow 2002-2003)
Perceiving silence: Information access, public awareness and the
integration of the deaf in Hungary.
CEU Faculty fellows
Judit Sandor, Hungary (fellow 2002-2003)
Changing concepts in biomedical law and policy.
Medical Policy
Arman Vardanyan, Armenia (fellow 2000-2001)
Advocacy strategies for the mentally disabled in Armenia with lessons
from Eastern Europe.
Main Deliverables of the Project
a. 20-page policy study;
b. policy briefing paper;
c. workshop on patients’ rights;
d. research paper;
e. publication including the policy study,
the research paper and
the materials resulted from the
workshop.