Project Proposal
Present and future Challenges in Lithuanian
Mental Health Policy: shifting from deinstitutionalization
towards independent living
2004 Fellowship issue area: Public Health, Mental disability Advocacy Program (MDAP)
People with mental disabilities are one of the most
disadvantaged groups of people in Europe. Historically, society has tended
to isolate and segregate them and, despite some improvements, discrimination
against individuals with disabilities continues to be a serious and pervasive
social problem. Prevailing negative attitudes towards people with
mental disabilities mainly arises through a lack of information about this
group of people, as well as misleading information about their supposed
"danger" to society. In Central and Eastern European countries people with
mental disabilities are generally considered dependents, not full members
of society. The care for this group is most often provided in isolated
and inhumane closed institutions. This system of service provision is still
seen by most political decision-makers as the most efficient. The continuing
existence of illegal discrimination and prejudice denies people with disabilities
the opportunity to integrate fully into the community and to enjoy the
same rights and possibilities as all other individuals.
The Lithuanian legal system guarantees basic human
rights for people with mental disabilities, including sufficient medical
care, education, proper living conditions in the community, and assistance
to the person and family members. However, legal provisions are often vague
or unclear, and do not address the primary issues of persons with mental
disabilities in a proper or adequate way. There are many cases of rights
violations or of refusal to recognize these laws. Issues affecting people
with mental disabilities are different in that people with mental disabilities
usually can not fully represent their interests themselves, without the
help of family members, nongovernmental organizations, or other interested
persons.
The main objectives of this policy research project
are to: analyze Lithuanian legislation and government policy on mental
health and social welfare, to overview the current situation with regard
to deinstitutionalization and providing housing for people with both intellectual
and mental disabilities in the community (supportive housing); to provide
an overview of the relevant international norms and standards (United Nations’
declarations and resolutions, European documents) and their interpretation
and implementation in the domestic legislation; to research best practices
from other countries in providing efficient community based supportive
housing services together with other assistance in the community for people
with intellectual disabilities and people with mental health problems;
to devise recommendations based on the research on developing an effective
strategy to encourage the deinstitutionalization process and promote positive
changes in Lithuanian mental health and social welfare policy. The policy
paper will target relevant government authorities, policy stakeholders,
and the general public in an attempt to raise awareness about the issues
affecting particularly people with intellectual disabilities in order to
address their specific needs.
Within the framework of the project, an analysis
of national legislation regulating the protection of human rights of people
with both intellectual and mental disabilities residing in the closed residential
institutions in Lithuania will be carried out. The present situation in
the large institutions will be analyzed and documented. A study of all
the support and assistance structures currently available for people with
mental disability both in the institutions and the community will be performed.
In the course of the project an overview of internationally adopted legal
acts (both binding and non-binding) with respect to people with mental
disabilities will be made. Specific focus will be on the provisions that
are necessary for adequate support for people with mental disabilities
within the community, their implementation and functioning in Lithuania.
The research will also consider examples of best practices from other countries
of community based supported housing services and other support services
in the community for people with both intellectual disabilities and mental
health problems. Two examples from Central and Eastern European countries,
one – from a western European country and possible reference to the US
supported living programs within mental health system will be taken as
the bases.
A system of in-patient social care institutions
still prevails in Lithuania. Great numbers of people both with intellectual
disabilities and mental health problems live in these large residential
institutions (social care institutions, psychiatric hospitals) which generally
do not comply with international standards regarding hygiene, accessibility
and ultimately do not correspond to the principles of de-institutionalization
and modern social care standards.
The data obtained from the research will help to form an impartial
opinion about the current life situation of people with mental disabilities
and the barriers they face in exercising their fundamental human right
to safe and proper living conditions in the community in Lithuania. Comparing
best practices from other countries in promoting and implementing more
efficient, integrated care for persons with mental disabilities, based
on respect for their fundamental human rights, will help induce of the
shift from segregated institutional care to social inclusion. It will draw
recommendations to address relevant and effective strategies for positive
changes in Lithuanian mental health and social welfare policy which will
be the basis for creating living conditions for people with mental disabilities
in the least restrictive environment. In this way, the research also aims
to affect deinstitutionalization policy in Lithuanian.
There are many areas wherein both people with intellectual
disability and mental health problems face similar problems, human rights
violations and discrimination. Covering all these areas, the research will
help to identify specific needs of people with intellectual disability
and mental health problems when developing alternative community based
care services for there two groups of people. The review and documentation
of the current situation of people with mental disabilities will be finalized
and the policy paper prepared for providing conclusions and recommendations
on the basis of the research. It will focus particularly to improve the
organization and coordination of community based support for people with
intellectual disabilities, considering their specific needs for support.
Recommendations for the relevant Lithuanian government and local authorities,
policy stakeholders, NGOs and international organizations, as well as general
public to intensify their efforts to recognize, ensure and realize the
rights of people with intellectual disabilities in Lithuania will be proposed.
This can be used by them for lobbying relevant authorities to implement
and enforce existing laws and opportunities as well as to challenge various
obstacles that people with intellectual disabilities are facing.
Various support structures, i.e. existing ones and the ones that should
be introduced in the country should be mobilized. The role of disability
NGOs should be recognized to organize support services in the closest surrounding
within the community to make them more available and effective on the basis
of identified needs of people with intellectual disabilities and their
families. An ultimate aim of the research is to safeguard social integration
and strengthen independence of people with intellectual disability to the
largest extent. Leaving behind the humiliating attitude towards people
with intellectual disabilities and mental health problems which characterizes
them as dependents and reinforces their social exclusion should be replaced
by high quality social services providing them with a greater number of
opportunities to become equal members of society. More humane European
standards, coordinated actions and specific programs encouraging people
with intellectual disabilities to realize optimum independence should be
embraced.
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